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The Brain Injury Association of Massachusetts is supportive of research efforts regarding the epidemiology, prevention, treatment, rehabilitation and facilitation of positive outcomes for individuals who have experienced acquired brain injuries.

Research Opportunities in Massachusetts

The Brain Injury Association of Massachusetts does not endorse or recommend any specific research project, and encourages individuals with ABI, and/or their legal guardian when applicable, to contact the investigators conducting these research studies to inquire about the study requirements, their eligibility to participate, and any other questions related to the research program that she/he may be interested in.

Traumatic Brain Injury-Inpatient Hospitalizations, Observation Stays & Emergency Department Discharges, Massachusetts Residents

FFY 2016-2018

In December of 2022, the Brain Injury Association of Massachusetts (BIA-MA) released a report, Traumatic Brain Injury, Inpatient Hospitalizations, Observation Stay & Emergency Department Discharges, Massachusetts Residents, FFY 2016-FFY 2018, summarizing updated epidemiological data regarding traumatic brain injury (TBI) in Massachusetts.  Key highlights of the report include.

  • There was an average of 8,831 hospital stays and nearly 63,000 emergency department visits associated with a traumatic brain injury annually among MA residents for the time period studied (FFY 2016-2018).
  • The most common mechanism of injury was unintentional fall accounting for 67% of TBI related inpatient stays and approximately 51% of ED visits.
  • TBI-related hospital stays were highest among adults 70 years of age and older.
  • Children 0-2 years of age had the highest rate for TBI-related ED visits.
  • Although most persons with TBI treated in the inpatient setting were discharged home, a sizable proportion of older adults were discharged to skilled nursing facilities.
  • Analysis of discharge disposition data related to inpatient hospitalizations revealed that the majority (47.5%) were discharged home, and of these, 64% were without an identified service.
  • Only 11.6% of individuals hospitalized for TBI were transferred to a rehabilitation unit or hospital. The mean and median lengths of stay for TBI-related inpatient hospitalizations were 5.9 days and 3.7 days, respectively.

Clinical Trials

This site provides information regarding open and completed clinical treatment trials conducted with a wide range of disorders, including brain injuries. To access information regarding clinical trials with individuals who have experienced acquired brain injuries, it is suggested that the following access steps be followed:

  1. Go to the Homepage of https://clinicaltrials.gov
  2. Complete the fields for “Find a Study” which include the following:
  3. Status:  Click the box for “Recruiting and not yet recruiting studies” to find open research  studies
  4. Condition or Disease: Type in acquired brain injury, or a type of acquired brain injury, such as traumatic brain injury, stroke, brain tumor, brain infection (encephalitis, meningitis), or other specific neurological condition or disorder.
  5. Country: Enter United States. A drop-down menu will then appear on the screen on which you can click: Massachusetts. You may also enter a city and distance.
  6. Search: Click the search button, which bring you to a list of studies related to the information you entered on the home page.
  7. Studies Page: On this page the studies are listed, and additional filters may be applied, which include: age of participants, gender, study type, consent forms, and other information.  Clicking on a specific “Study Title” will bring you to a page with detailed information regarding the study and the researcher.

National Institute of Neurological Disorders & Stroke (NINDS)

https://www.ninds.nih.gov

The NINDS website provides information regarding diseases and disorders for persons with neurological conditions, professionals, family and caregivers. The Clinical Research division of the NINDS provides oversight for clinical trials to test the safety and efficacy of innovative treatments of neurological disorders, including acquired brain injury, as well as epidemiology and biomarker studies.

To access information regarding clinical trials with individuals who have experienced acquired brain injuries, it is suggested that the following steps be followed:

  1. Go to the Homepage of the NINDS website (www.ninds.nih.gov) and click “Disorders” at the top of the page
  2. Next go to “Clinical Trials”
  3. On the Clinical Trials page, click “View NINDS Clinical Trials” located under the text for Find Clinical Trials
  4. On the Find NINDS Clinical Trials page, enter the disorder in the Search Disorder box (e.g., traumatic brain injury) and click search. Additional filters may be applied: e.g., study location; recruitment status (open, completed).

Brain Injury Association of America

https://www.biausa.org

In addition to promoting awareness, treatment and education to improve the quality of life for individuals affected by brain injury, the BIAA supports participation in research studies and the dissemination of research findings. Information regarding current research studies seeking participants, as well as eligibility requirements, are posted on the BIAA website.

In 2019, the BIAA also established a research grant program, with the primary goal of funding cures for chronic brain injury. Dissertation and seed grants, for both young investigators and brain injury scholars, are offered, and interested investigators may apply for funding on the BIAA Application Portal.